- Mass screening for celiac disease may be coming. Researchers are consistently finding large numbers of undiagnosed adults and children when mass screening is performed. Much of the time, the celiac patients discovered in the mass screening do not have “typical” celiac symptoms. Link to ASK study https://loom.ly/2sAytAw Link to Norwegian study – https://loom.ly/JvWr9ws
- The picture of a “typical” celiac patient is changing. Twenty years ago a description of a typical celiac patient would have been a white child with persistent diarrhea, weight loss, and malnutrition. Researchers know that celiac affects all populations at approximately the same rate and celiac patients may be underweight or overweight. New triggers for celiac workups include unexplained anemia, early onset osteoporosis, and persistent constipation.
- Celiac patients are really afraid of the long term consequences of the disease driving fear and if taken to the extreme, orthorexia or an obsession with healthy eating with associated restrictive behaviors. Think of those that eat one or two foods only because those are the only ones they can tolerate. Also, celiac parents are afraid for their children as well.
- The social and emotional toll of having celiac disease is a heavy burden for patients, families, and caregivers. This area of research is significantly lacking and really needs to be explored by the mental health community. The last study comparing the burden of celiac to end-stage renal disease was performed in 2014. There needs to be more work done here. Study discussing burden of celiac disease – https://loom.ly/3bP-X9Y
- Celiac patients are not as angry as they used to be regarding fad gluten free dieters. From my brief “research”, celiac patients are almost grateful to gluten free fad dieters because they brought awareness and a basic understanding of what gluten free is. celiac #glutenfree #celiacdisease #coeliac #celiacawareness #gluten #allergy #glutensensitive #celiacdisease #celiacsymptoms
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