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Latest Posts
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The Fly and Drive Road Trip
Probably the hardest of all road trips to plan, the Fly and Drive…..it combines all of the aspects of the Wanderer trip without the ability to prepare in your own kitchen. This is where you are depending on a lot… Continue reading
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The Wanderer Road Trip
The Wanderer Road Trip involves travel over the course of a few days or weeks where the travel is the most important part of the trip. It may mean staying in a particular location for a day or two and… Continue reading
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Road Trip Ideas
A couple of days I asked what you guys wanted to hear about. Since we are coming up on summer many people asked about road trip planning. In my mind there are three types of road tips – the wanderer,… Continue reading
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Clinical Trial Effect….
The only treatment currently available for celiac disease is a gluten free diet. For most celiac drugs in clinical trials today, the trial participants are supposed to maintain their gluten free diet. Often these patients feel better during the clinical… Continue reading
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Social….
Someone asked me to post more about the social aspects of having celiac disease…so here goes… When I was diagnosed with celiac disease, I kept it a secret from friends for a while. it was back when making fun of… Continue reading
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It shouldn’t be this hard…
I wanted to make a Gluten Free Sloppy Joe casserole. The recipe called for Manwich. Manwich is not labeled gluten free but scanning the ingredients there is nothing that set of alarm bells. So, of course, the questioning and internet… Continue reading
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Follow up post diagnosis
What if any follow up have you had since diagnosis? A study from 2012 showed that between 41% and 88% ad a follow up visit regarding celiac. However, less than 35% of celiac patients were followed up with according to… Continue reading
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Celiac and Race
Celiac patients are often thought of as thin, white, rich, women. Not only is that stereotype changing, but it is also changing how people of different races are diagnosed with celiac disease. More specifically, a study in of celiac disease… Continue reading
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Refractory celiac and Enteropathy Associated T-cell Lymphoma rates increasing
Just in case you don’t know, celiac disease that does not heal in 1 year on a strict gluten free diet is considered refractory celiac disease. I know my celiac disease took longer than a year, about four years to… Continue reading
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Skin Cancer, DH, and Celiac
Skin cancer is the most common type of cancer. There are a couple of types -squamous cell carcinoma, basal cell carcinoma, and melanoma. Squamous cell carcinoma and basal cell carcinoma are not considered life threatening cancers. They can be disfiguring… Continue reading
