Mast Cell Activation Syndrome and Mastocytosis are big topics. How these diseases relate to celiac disease is a big, complex interaction. In order to get to specifically how mast cells work, I think I need a basic understanding of some big concepts in the immune system. I've had to go back to learn a lot of concepts about the immune system simply to make sense of the mast cell interactions in the body. I'm sharing my learning journey with you!
I asked and you delivered. I had writers block at the end of last week and have a slew of topics to discuss over the next few weeks. A few of them are quick and easy answers. Others will require more in depth research and a day or two of articles. Some I've written about in the past, but they might need updating. Here is the list and my comments about the next steps with each.
Sometimes I feel like I talk a lot about the same things - proper diagnostic process, eating gluten free, living your life, and having a bit of a sense of humor about this whole celiac thing.
Symptoms and villous blunting are not correlated.
Just do it - The endoscopy I mean!
Pre-Valentines love letter to the long suffering partners of people with celiac disease!
32% of gluten free food in restaurants contain gluten - but there's more to it!
The only "cure" for celiac disease is a gluten free diet. No medicine or pills can degrade the gluten to alleviate the autoimmune cascade associated with celiac disease. I think we need to talk about control rather than the gluten free diet being a cure.
I always feel like going to the Gastroenterologist is like a pop quiz. I wonder if I ate gluten free enough to ensure my follow up celiac tests are normal. Always hope that there is no damage in the small intestine or colon. But until the results come back, I won't know how I've been doing.
Today is prep day. All day. I'm not happy about it but I am happy about what we may learn. I have a repeat colonoscopy and endoscopy tomorrow.