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Welcome to this page. A real person writes this blog about celiac disease. It is about the good, the bad, and the ugly in living with celiac disease. I talk about life experiences, clinical drug trials, and living more gracefully. Sometimes, I get a bee in my bonnet to rant and rave about something in the celiac world – both good and bad. I hope you enjoy these posts and feel free to reach out!

Latest Posts


  • Lunch Today

    Lunch .. Mandarin oranges, slices apple, paremsan cheese, toasted Against the Grain Baguette with marscapone and blueberry jam, and Crunchmaster crackers. Yum! #celiac #celiacdisease #glutenfree #glutenfreerecipes #glutensensitivity Continue reading

  • Larazotide acetate prevents diarrhea

    Larazotide acetate may help prevent gluten exposure related diarrhea. Larazotide acetate is the only therapy for celiac disease currently in Phase 3 trials. A meta-analysis of four randomly controlled studies including over 600 patients was reviewed. The scientists concluded that… Continue reading

  • Feeling poorly

    Sometimes I feel poorly. Monday was the perfect example. Nausea, fatigue, some gastrointestinal distress (but not major), and just an in general not feeling well. But the issue is, I didn’t eat out nor did I eat any heavily processed… Continue reading

  • Does your house have to be 100% gluten-free?

    One of the first questions along this gluten-free journey is – will your house be 100% gluten-free? Most of the time, the knee jerk reaction is that yes, everything will be 100% gluten-free in my home. And I completely understand.… Continue reading

  • Things go sideways

    Social Media is great. Heck, I can use it to vent a great deal of frustration rather than annoying my husband all the time. At the same time, it can be a constant source of frustration and disillusionment. Today is… Continue reading

  • ZED 1227

    ZED1227 looks like it might be promising as an adjunct to a gluten free diet for those with celiac disease. Continue reading

    white and orange medication pill on persons hand
  • Old Wheat vs. New Wheat

    “Ugh, celiac disease is caused by GMO modern wheat.” “My cousin with celiac disease went to Europe. He ate European bread without a reaction.” “Ancient grains don’t cause celiac disease. You should eat more of those.” We’ve all heard these… Continue reading

  • TTG IGA Negative & Still Celiac?

    Celiac disease is commonly found when a patient reports symptoms to their doctor. Simple blood tests are run. Most commonly the Tissue Transglutaminase IGA or TTG IGA test is done. The TTG IGA test often determines if further celiac testing… Continue reading

  • Why to participate in celiac disease clinical trials?

    here are a variety of clinical trials out there for those with celiac disease. Some are observational – where you just report to the researchers what you ate or how you felt. Some are investigational – where they are testing… Continue reading

  • Food Label Modernization Legislation

    The Food Labeling Modernization Act of 2021 (FLMA)  was introduced into both houses of Congress on August 4, 2021. Call your Congress Member or send them a message today about this important legislation. Continue reading