Welcome to this page. A real person writes this blog about celiac disease. It is about the good, the bad, and the ugly in living with celiac disease. I talk about life experiences, clinical drug trials, and living more gracefully. Sometimes, I get a bee in my bonnet to rant and rave about something in the celiac world – both good and bad. I hope you enjoy these posts and feel free to reach out!

Latest Posts


  • The True Costs of Living with Celiac Disease

    Celiac disease incurs various costs beyond finances, affecting everyday life. It influences grocery bills, dining choices, travel plans, and celebrations, and adds mental burdens such as planning and safety concerns. Living gluten-free is a continuous challenge and not merely a… Continue reading

    Graphic asking, 'What has celiac disease cost you?' with icons representing physical, emotional, and financial costs.
  • Costs of Celiac – A Gluten Free Diet vs Untreated Celiac

    The post discusses the challenges of adhering to a gluten-free diet versus the consequences of untreated celiac disease. While the diet is costly and can lead to nutritional deficiencies, untreated celiac disease poses serious health risks, including increased mortality and… Continue reading

    The gluten-free diet has a cost. So does untreated celiac disease. Understanding both matters.
  • Asymptomatic Celiac: To Gluten or Not to Gluten?

    The author reflects on the complexities of living with celiac disease despite having well-controlled symptoms. Although their health appears stable, they ponder the necessity of a gluten-free diet. The conflicting risks of celiac disease and dietary adherence prompt deep questions… Continue reading

    Questioning if a gluten-free diet is needed when celiac is well controlled, with text about new guidance and core concerns on a white poster.
  • The Reality of Celiac Disease: It’s Not Just Digestive

    The author expresses frustration over proposed guidelines allowing asymptomatic individuals with confirmed celiac disease to choose whether to follow a gluten-free diet. Highlighting the disease’s systemic nature, the author emphasizes that dismissing celiac symptoms can lead to severe long-term health… Continue reading

    Question about when celiac treatment starts sounding like a choice; notes draft guidance on gluten-free diet; Fat Celiac logo in corner.
  • Mortality increases during first year after Celiac Diagnosis

    Celiac research can sound scary. The first year after diagnosis matters because patients need real follow-up, education, and support. Continue reading

    Hero banner: The First Year After Diagnosis May Be the Most Important, with subtitle about the first-year window in celiac mortality research; Fat Celiac logo at top-right.
  • The Great Manwich Debate

    The author expresses frustration over the challenges of gluten-free living, specifically when using products like Manwich that lack clear gluten-free labeling. This uncertainty leads to anxiety about food safety and health, complicating mealtime. The piece highlights the need for practical… Continue reading

    Poster front for 'The Great Manwich Debate' with a sloppy joe sandwich and gluten-free humor (Fat Celiac branding).
  • Celiac Disease Clinical Trial: What Nexvax2 Taught Me About Gluten Reactions

    In March 2019, I was flying from Atlanta to Nashville for the Nexvax2 celiac clinical trial. The trial did not fix my disease, but it gave me controlled exposure, timed symptoms, and a clearer understanding of how my body reacts… Continue reading

    Quote graphic: 'This is bad. This is really bad. Now, the mental gymnastics start.' — Fat Celiac
  • If they won’t call it gluten free, why should I?

    The discussion emphasizes the significance of gluten-free labels, particularly in the context of Heinz ketchup variations. It highlights the confusion caused by differing labels for essentially identical products, urging the celiac community to trust labeled items. The piece advocates for… Continue reading

    Slogan banner: 'If Heinz won’t call it gluten-free, stop doing it for them' with a ketchup bottle on the right; emphasizes accurate gluten-free labeling.
  • Living with Celiac Disease: More than Just Food

    Celiac disease imposes a significant burden, encompassing financial, social, physical, and emotional challenges. It leads to higher grocery costs, social isolation, health risks, and persistent anxiety regarding food safety. This constant vigilance can be exhausting, impacting daily life. However, resources… Continue reading

  • NOW Hiring- Gluten Free Lifesytle Ambassador

    A Gluten-Free Lifestyle Ambassador is sought for a demanding part-time role that requires extensive food science knowledge, meal preparation, snack management, and risk assessment without additional compensation. Applicants must manage increased grocery expenses, navigate social pressures, and endure frequent inconveniences… Continue reading

    Now HIRING! Gluten Free Lifestyle Ambassador—job posting with details about a fast-paced gluten-free environment, including notes on gluten-free vs gluten-friendly language and Fat Celiac logo in the corner.