fbpx

Welcome to this page. A real person writes this blog about celiac disease. It is about the good, the bad, and the ugly in living with celiac disease. I talk about life experiences, clinical drug trials, and living more gracefully. Sometimes, I get a bee in my bonnet to rant and rave about something in the celiac world – both good and bad. I hope you enjoy these posts and feel free to reach out!

Latest Posts


  • Gluten consumed on a gluten free diet – duh…

    There has been much hulabaloo made about a recent study that said that people on a strict gluten free diet are consistently exposed to gluten. My answer is…. of course we are consistently exposed to gluten. Continue reading

  • Certified gluten free – not 100% gluten free

    What does the gluten free label and certified gluten free label mean in the US? Let’s find out. According to the FDA, in order for a product to be labelled gluten free it has to be lower than 20 parts… Continue reading

  • Celiac and Money

    Discussion of money in celiac research and recommendations for saving some money on gluten free groceries. Continue reading

  • Interesting article about self diagnosis.

    The woman in the article, a former nurse, believed she had celiac disease. She self diagnosed, removed gluten, and continued to be sick. She was finally diagnosed with something completely unrelated. Please continue eating gluten and  consult a physician if… Continue reading

  • PVP Biologics, U of Maryland, and Brain Damage

    d by Takeda, the University of Maryland incorrectly fed gluten to a student with celiac disease, and it seems celiac disease can cause brain damage. Three big pieces of news today and let’s pound through it. Continue reading

  • Clinical Trial Update

    I am updating all of the information on active clinical trials right here! I hope you can find something of interest and are willing to participate. Not all trials involve drugs or consuming gluten so find one that suits you… Continue reading

  • The little things

    I normally write about celiac disease. I cannot today. My heart is breaking for a variety of reasons. Continue reading

  • The end of celiac awareness month

    We are coming to the end of celiac awareness month. I am grateful for all of you that read this blog. We’ve also added a lot of new friends to the blog – so welcome. I started this blog for… Continue reading

  • Why do I need a diagnosis?

    I read this a lot. I used to think it was unimportant. Now, I’m not so sure. Having celiac disease means a lifelong gluten free diet. Right now there are no medicines or any other cure, just a major lifestyle… Continue reading

  • Doctor recommends change

    Doctors are starting to realize that a gluten free diet is aspirational rather than achievable. They are starting to realize we need help. Continue reading