I just reviewed the Celiac Disease Patient Advocacy Summit. There is a lot of good information regarding current trials and how to advocate within your community. But I want to focus on the need to participate in clinical trials. Lots of study types There are a variety of clinical trials out there for those with … Continue reading Why to participate in celiac disease clinical trials?
Tag: #Celiacawareness
Exocrine Pancreatic Insufficiency (EPI) and celiac disease may be common cohorts. Today we will discuss the pancreas functions, what EPI is, and what the research says about celiac and EPI.
Sorry everyone, I've been missing writing about celiac disease. With the election, life, a new job, and a tween that is making me crazy, I've been remiss in keeping up with this blog.
In my mind, gluten free means any food item free from any gluten containing ingredient. However, that probably isn't good enough for everyone. So, the United States Food and Drug Administration clarified the definition of gluten free. Today is all about labels!
Gluten free food boredom is a real thing. Many times, those of us with food issues like to stick to the same foods because we know they are safe and we won't get sick. I think this is both good and bad.
Things are going well. Rotation of celiac safe meals and restaurants are standard in the house. Grocery shopping is easy because you can real labels like a champ. Symptoms are under control. Then the doubt seems in - is the diagnosis correct? Do I really have celiac? Could they have gotten it wrong?
Expecting a baby is nerve racking and exciting time. Parents can begin to introduce solid foods at 4 to 6 months. For most, this is a very exciting time. But for those with celiac, moving to solid foods can be a time a of great concern. If a parent or sibling has celiac disease, there is a much greater chance that the child will have celiac disease. So, when is the best time to introduce gluten containing foods to at risk children?
The only "cure" for celiac disease is a gluten free diet. No medicine or pills can degrade the gluten to alleviate the autoimmune cascade associated with celiac disease. I think we need to talk about control rather than the gluten free diet being a cure.
A new clinical trial is scheduled for what was once known as AMG714. It is now Pro015 due to the licensing and funding agreement between Amgen and Provention Bio.
For the most part, I often feel like celiac disease is the wild west. Science knows a lot about celiac disease. It is the only autoimmune disease with a known trigger - gluten. When gluten is removed from the diet, all is supposed to be okay. But many people diagnosed with celiac don't get to "healthy".