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Welcome to this page. A real person writes this blog about celiac disease. It is about the good, the bad, and the ugly in living with celiac disease. I talk about life experiences, clinical drug trials, and living more gracefully. Sometimes, I get a bee in my bonnet to rant and rave about something in the celiac world – both good and bad. I hope you enjoy these posts and feel free to reach out!

Latest Posts


  • What would you say?

    If you could say anything to someone designing a drug trial for Celiac disease, what would you say? With the stopping of the Nexvax trial and the upcoming Phase 3 trial of Larazotide acetate (INN-202), these are two completely different… Continue reading

  • What do I believe?

    It’s Sunday morning – come to the church of Fat Celiac where I will preach from the gospel Celiac disease and lay out what I believe. Continue reading

  • Food Dilemma

    Do I make my son choose a safe restaurant for me on his 12th birthday? Continue reading

  • Shut Down

    Nexvax2 clinical trial terminated. Continue reading

  • Food challenge #2 update

    Threw up. Twice. Once it was all liquid. The liquid I drank for the challenge. Then I tried to eat. That came up too. That one was on me for being dumb. We will talk about that later. We will… Continue reading

  • Could it be enough?

    I wasn’t sick on my vacation!!! I shared a house with gluten eaters and kept myself safe. Was it Nexvax or something else? Continue reading

  • Random Thoughts

    Random thoughts about planning food for vacation and updates on new things for the site Continue reading

  • Focaccia Egg Sandwich

    I drove 20 minutes out of my way to stand in line for 30 minutes to get a gluten free focaccia egg sandwich. Continue reading

  • Phase 3 Clinical Trial

    Innovate Biopharmaceuticals starting phase 3 clinical trials!! Continue reading

  • Car Trip

    We are going to the beach next week. We have an 8 -10 hour car ride to our destination. Woo Hoo!! I’ve got some suggestions on where and how to eat. A cooler with supplies is great – water, apples,… Continue reading