I’ve heard a lot of people talk about how angry they are about this Robby Hoffman thing.

I’ve got to be honest—it doesn’t even crack my Top 10.

Robby Hoffman is a comedian. She said something ignorant about celiac disease. Congratulations. She joined the millions of people who don’t understand celiac disease.

What actually makes me angry?

1. There should be a treatment for celiac disease by now. A cure is ideal. Something that lets me return to a normal diet. Failing that, give me something that protects me from cross contact. But “don’t eat gluten” cannot be the final answer forever.
2. People are still spending years—sometimes decades—trying to get diagnosed. We know what celiac disease looks like. We know the symptoms. We know the complications. Yet people are still being told it’s stress, IBS, anxiety, menopause, aging, or that it’s all in their heads. Unacceptable.
3. The complete lack of follow-up many patients receive after diagnosis. Here is your diagnosis. Here is a pamphlet. Good luck. That’s a pat on the head and get out of my office—not healthcare.
4. Social media has become a hurricane of celiac misinformation. Too many people with half-information preaching like it is gospel. It’s overwhelming and dangerous.
5. The idea that a biopsy alone is the “gold standard” for diagnosis. It isn’t. Medicine is rarely as simple as one magic test at one point in time. Bloodwork and biopsy are strongest when they support one another. When they don’t, that’s when the hard diagnostic questions start.
6. The eye rolls when I say I have to be gluten free. I didn’t judge your paleo phase, your juice cleanse, your celery juice era, your keto phase, or whatever diet TikTok sold you this month. My gluten-free diet is not a hobby. It’s treatment.
7. The lack of urgency around celiac disease. More people have celiac disease than Crohn’s and colitis combined. To be fair, Crohn’s and colitis can kill you quickly. Celiac disease kills slowly, so nobody cares.
8. Purity culture in the gluten-free community. “I won’t eat anything that isn’t organic and certified gluten free.” Awesome. I live over here where lots and lots of gluten-free foods exist without those labels. Do your best. Learn. Adjust. Heal. Repeat.
9. The expectation that you will never make a mistake. You will. Every celiac patient eventually does. The trick is whether the mistakes are getting less frequent. If they are, keep up the good work. You are living gluten free in a gluten-covered world. It’s hard out here and I’m doing the best I can.
10. The judgment from other celiac patients. I am not the gluten police. I am not revoking anybody’s celiac card. My job is to provide information. What you do with it is between you, your doctor, and your nutritionist.

I could probably make this a Top 25 list.

What would you add?