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I was diagnosed with celiac in 2013. I did not really start looking into celiac based social media groups until around 2017. I found a lot of things I had not thought of. My favorite discovery was that each incident of glutening was bringing me closer to death. Super scary stuff!

Once the panic wore off, I started researching. I dove into the scientific research. Reading, learning, and understanding the body of knowledge surrounding celiac disease.

Social media allows people to communicate. It allows people to share their stories, knowledge, and experiences. At the same time, not every reaction, rash, or eye twitch is related to gluten. Whether you have celiac disease, you are a super sensitive celiac patient, or you are gluten sensitive. Not everything is related to gluten.

When I say, distilled, unflavored liquor is gluten free, it is. The way distillation works means gluten is too big to be transferred to the final product. I often give links to articles from reliable sources confirming this statement. But the statement that distilled, unflavored liquor is gluten free is indisputable due to the way distillation works. Trust me, I have looked it up and you can too. A quick search about distillation and gluten will confirm everything I’m saying.

Reactions are arbitrary and open to interpretation as to the root cause. I believe that you are reacting to something in the alcohol. But is it gluten? No. And that’s where social media jumps the shark for me.

I do not question whether someone is having a reaction. Rashes, vomiting, diarrhea, constipation, emotional mood swings, and brain fog are all common symptoms. They can be caused by a million things. Is it sometimes gluten? Absolutely. Is it always gluten? I hope not. If so, you need to change your diet 😉

My point is that blaming gluten for everything is a slippery slope. Determining if gluten is the actual root cause of your reaction is vital. It leads to a better understanding of your disease.

#celiac #glutenfree #celiacdisease #gluten #glutenfreeliving

FatCeliac Avatar

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3 responses to “How I post about being gluten free….”

  1. andrea hughes Avatar
    andrea hughes

    It’s very disappointing to be blocked from your facebook page for a polite comment when your website clearly states that it’s a place for “Smart, informed discussion of celiac disease”. Here is a balanced video for you to watch https://www.youtube.com/live/jNUDH35iQyE?feature=shared that may influence your views. You have a duty of care to provide a balanced perspective to people looking to you for advice. Let’s hope that you’re not wrong and embarrassed in the future for being so sure that you’re right and shutting people down. Let’s hope that you continue to be well as I am constantly meeting coeliacs who are unwell basing their diet on a traditional gluten free doctrine . Shame on you for being so blinkered and closed to discussion when you’re in such a privileged position.

    1. FatCeliac Avatar

      I never said to drink alcohol or not drink alcohol. It is your choice. I’m providing information regarding the gluten free status of a specific kind of alcohol that is indisputable. That’s the information to take away.

      I too was unwell on a gluten free diet alone. I sought help from Dr. Osborne. My experience with Dr. Osborne did not change the trajectory of my disease nor increase my health, but did drain a lot of money from my bank account.

      What changed my attitude and understanding of my celiac disease was education, knowledge, and research I did myself. I figured out what my gluten reactions actually were. Armed with knowledge about what my reactions were, I was free to explore the gluten free world and live freely. A true understanding of celiac disease is what I’m advocating for in my site and my posts. What you call privilege, I call a lot of hard work.

      So, I’m trying to pass that information along to others for free. If you don’t like my information, don’t follow it.

      1. Quotner Avatar

        FatCeliac, we are great fan of your work. Just keep it up and keep going.
        https://quotner.com/

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