I try really, really hard not to get into social media fights with people. Rarely do I feel better after having argued with someone on social media and I know better. But sometimes, I cannot let it slide. I couldn't let it slide a few days ago.
I just reviewed the Celiac Disease Patient Advocacy Summit. There is a lot of good information regarding current trials and how to advocate within your community. But I want to focus on the need to participate in clinical trials. Lots of study types There are a variety of clinical trials out there for those with … Continue reading Why to participate in celiac disease clinical trials?
Pre-Valentines love letter to the long suffering partners of people with celiac disease!
In my mind, gluten free means any food item free from any gluten containing ingredient. However, that probably isn't good enough for everyone. So, the United States Food and Drug Administration clarified the definition of gluten free. Today is all about labels!
Thank you for reading!!!
The only "cure" for celiac disease is a gluten free diet. No medicine or pills can degrade the gluten to alleviate the autoimmune cascade associated with celiac disease. I think we need to talk about control rather than the gluten free diet being a cure.
Leaky gut or the idea that the gut is overly porous and things that should be contained within the digestive tract are leaking out into the body causing disease. This is a common idea in the pantheon of Facebook groups, naturopathic doctors, functional medicine, chiropractors, and other less traditional medical arenas. But is it legit?
There might be a link to an acquired bacteria and celiac disease leading to potential prevention and cure of the disease.
I am obsessed with poo. I look at it in the toilet, examine it, think about it, wonder if it is too much or too little, and even sometimes take pictures of it. I really use my poo as a gauge of my health. I even ask my kids about their poo habits. I want to talk about a few things poo related - steatorrhea and gastrocolic reflex.
For the most part, I often feel like celiac disease is the wild west. Science knows a lot about celiac disease. It is the only autoimmune disease with a known trigger - gluten. When gluten is removed from the diet, all is supposed to be okay. But many people diagnosed with celiac don't get to "healthy".