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Blog about issues confronting those with Celiac Disease.

Blog about issues confronting those with Celiac Disease.

Talking about medical and social issues affecting those with Celiac Disease.

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  • Nexvax Study
    • Injection #8 – Glutened? No Way
    • Nexvax Study Update
    • Nexvax #6 – Post Injection Side Effects
    • Nexvaxx Injection #6
    • A New Journey Begins
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  • Medical Research
    • Phase 3 Trial Started – Larazotide Acetate
    • Type 1 Diabetes, Hashimotos, & Celiac
    • Another cure for celiac? ALV003
    • Another way to solve the Celiac problem
    • Another cure for celiac? ALV003
    • Good Day & INN-202
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    • Dermatitis Herpetiformis – Huh?
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    • Clinical Trial for gluten challenge!
    • To Endoscopy or Not – That is the Question
    • BioLineRx BL7010 – Drug Information
    • Gluten in Medication – Call to Action!
    • AMG 714 – Helps RCD2
    • Refractory Celiac
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    • Cure by 2021?
    • TIMP-GLI Deep Dive
    • KumaMax Drug
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    • Celiac Diagnosis and Management Podcast
    • Marsh Scores
    • Another way to solve the Celiac problem
    • Get Tested, Believe the results
    • Another cure for celiac? ALV003
    • INN-202 – Part 2
    • Good Day & INN-202
    • Drug Trial Cancelled
  • All things social
    • Social
      • Kitchens – Dedicated or Not?
      • Eating at a wedding???
      • Gluten free fad fading?
      • Luxury of choice
      • Joy of a Doughnut
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    • Better living
      • Snake Oil Salesmen and My New Normal
      • Thank you, Thank you, Thank you!
      • Gluten Free Kitchens
      • Food memories…
      • Struggle Bus
      • Not Everything is Gluten Related
      • For the “Old” Celiac
      • Get Tested, Believe the results
      • My First Grocery Store Trip
      • A Pop Quiz
      • A love note to the long suffering significant others
      • Gluten Free Kitchens
      • Kitchens – Dedicated or Not?
      • Eating at a wedding???
      • For the parents of Celiac kids
      • Stages of Celiac
      • Top Celiac Myths – Busted!!
      • May is Celiac Awareness
      • Celiac Awareness Month in May!
      • Support
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      • Exercise
      • What would you say?
      • What do I believe?
      • Food Dilemma
      • Random Thoughts
      • Focaccia Egg Sandwich
      • How to help a Celiac
      • Celiac and Lawsuits, part 2
      • Gluten Free Meals and Lawsuits
      • Mistakes were made
      • 100+ Posts – Thank You!
      • Gluten Free @ Aldi
      • Celiac, celiac, celiac
      • Wheat Straw Compostable Tableware
      • Thank you!!
      • Top Celiac Myths – Busted!!
      • For the parents of Celiac kids
      • Celiac and Kids
      • Last minute, afternoon BBQ
      • Newbie Pep Talk – 7 things to remember
      • The Who and When Celiac game
      • Bored with food – until today
      • The Family of a Celiac
      • A note to my friends about Celiac
      • Potpourri of thoughts
      • Gluten free fad fading? Nope!
      • Call your member of Congress
    • Recipes
      • Cooking
      • Bored with food – until today
      • Easter Menu
      • 4 Meals for 4 for $100
      • Menu Week of 3/11/19
      • Dinner and $100
      • Wednesday & Jack’s BBQ on Lower Broadway – Food Challenge Part 1

Tag: #GlutenSensitivity

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Why to participate in celiac disease clinical trials?

I just reviewed the Celiac Disease Patient Advocacy Summit. There is a lot of good information regarding current trials and how to advocate within your community. But I want to focus on the need to participate in clinical trials. Lots of study types There are a variety of clinical trials out there for those with … Continue reading Why to participate in celiac disease clinical trials?

April 9, 2021April 9, 2021#CeliacAllergy, #Celiacawareness, #CeliacCure, #CeliacDisease, #CeliacLife, #CeliacMedicine, #CeliacResearch, #CeliacSprue, #FoodAllergy, #FoodisMedicine, #Glutenallergy, #Glutenfree, #GlutenfreeDiet, #Glutenintolerance, #GlutenSensitivity, #Non-CeliacglutenSensitivity, #WheatAllergy, #Wheatintolerance, Celiac, Celiac Allergy, Celiac Cure, celiac diet, celiac disease, celiac friendly, celiac life, celiac medicine, celiac research, Celiac Research. Celiac Diet, celiac safe, celiac sprue, celiac vaccine, celiacawareness celiaclife celiadfriendly, clean food, coeliac, food allergy, food is medicine, gluten, gluten allergy, gluten free, Gluten Free Diet, gluten intolerance, gluten sensitivity, glutenfreemeals, NCGS, nexvax, Nexvaxx, non celiac gluten sensitivity, wheat, wheat allergy, wheat free, Wheat IntoleranceLeave a comment
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EPI and Celiac

Exocrine Pancreatic Insufficiency (EPI) and celiac disease may be common cohorts. Today we will discuss the pancreas functions, what EPI is, and what the research says about celiac and EPI.

February 28, 2021February 27, 2021#Celiacawareness, #CeliacLife, #FoodAllergy, #FoodisMedicine, #Glutenallergy, #Glutenfree, #GlutenfreeDiet, #Glutenintolerance, #GlutenSensitivity, #Non-CeliacglutenSensitivity, Celiac, Celiac Allergy, celiac awareness, Celiac Cure, celiac diet, celiac disease, celiac friendly, celiac life, celiac medicine, celiac research, Celiac Research. Celiac Diet, celiac safe, celiac sprue, celiac vaccine, celiacawareness celiaclife celiadfriendly, clean food, food, food allergy, food is medicine, food sensitivity, gluten, gluten allergy, gluten free, Gluten Free Diet, gluten free meals, gluten intolerance, gluten sensitivity, glutenfreemeals, healthy food, non celiac gluten sensitivityLeave a comment
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What does “Gluten free” mean?

In my mind, gluten free means any food item free from any gluten containing ingredient. However, that probably isn't good enough for everyone. So, the United States Food and Drug Administration clarified the definition of gluten free. Today is all about labels!

October 25, 2020October 24, 2020#CeliacAllergy, #Celiacawareness, #CeliacCure, #CeliacDiet, #CeliacDisease, #CeliacLife, #CeliacMedicine, #CeliacResearch, #CeliacSprue, #CeliacVaccine, #FoodAllergy, #FoodisMedicine, #Glutenallergy, #Glutenfree, #GlutenfreeDiet, #Glutenintolerance, #GlutenSensitivity, #Non-CeliacglutenSensitivity, #WheatAllergy, #Wheatintolerance, Celiac, Celiac Allergy, celiac awareness, Celiac Cure, celiac disease, celiac life, celiac medicine, Celiac Research. Celiac Diet, celiac sprue, celiac vaccine, food allergy, food is medicine, gluten, gluten allergy, gluten free, Gluten Free Diet, gluten free meals, gluten intolerance, gluten sensitivity, glutenfreemeals, NCGS, non celiac gluten sensitivity, wheat allergy, Wheat IntoleranceLeave a comment
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Boredom

Gluten free food boredom is a real thing. Many times, those of us with food issues like to stick to the same foods because we know they are safe and we won't get sick. I think this is both good and bad.

October 22, 2020October 22, 2020#Celiacawareness, #CeliacLife, #FoodAllergy, #FoodisMedicine, #gluten, #Glutenallergy, #Glutenfree, #GlutenfreeDiet, #GlutenFreeMeals, #Glutenintolerance, #GlutenSensitivity, #Non-CeliacglutenSensitivity, Celiac, Celiac Allergy, celiac awareness, Celiac Cure, celiac diet, celiac disease, celiac friendly, celiac life, celiac medicine, celiac research, Celiac Research. Celiac Diet, celiac safe, celiac sprue, celiac vaccine, celiacawareness celiaclife celiadfriendly, clean food, food, food allergy, food is medicine, food sensitivity, gluten, gluten allergy, gluten free, Gluten Free Diet, gluten free foods don't really taste like their gluten friends. Second, gluten free meals, gluten intolerance, gluten sensitivity, glutenfreemeals, healthy food, non celiac gluten sensitivity, Non-Celiac Gluten SensitivityLeave a comment
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Questioning diagnosis…

Things are going well. Rotation of celiac safe meals and restaurants are standard in the house. Grocery shopping is easy because you can real labels like a champ. Symptoms are under control. Then the doubt seems in - is the diagnosis correct? Do I really have celiac? Could they have gotten it wrong?

October 19, 2020October 19, 2020#Celiacawareness, #CeliacLife, #gluten, #Glutenallergy, #Glutenfree, #GlutenfreeDiet, #GlutenFreeMeals, #Glutenintolerance, #GlutenSensitivity, #Non-CeliacglutenSensitivity, Celiac, Celiac Allergy, celiac awareness, Celiac Cure, celiac diet, celiac disease, celiac friendly, celiac life, celiac medicine, celiac research, Celiac Research. Celiac Diet, celiac safe, celiac sprue, celiac vaccine, celiacawareness celiaclife celiadfriendly, gluten, gluten allergy, gluten free, Gluten Free Diet, gluten free meals, gluten intolerance, gluten sensitivity, glutenfreemeals, non celiac gluten sensitivity, Non-Celiac Gluten Sensitivity2 Comments
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Gluten introduction and babies

Expecting a baby is nerve racking and exciting time. Parents can begin to introduce solid foods at 4 to 6 months. For most, this is a very exciting time. But for those with celiac, moving to solid foods can be a time a of great concern. If a parent or sibling has celiac disease, there is a much greater chance that the child will have celiac disease. So, when is the best time to introduce gluten containing foods to at risk children?

October 13, 2020October 13, 2020#Celiacawareness, #CeliacLife, #FoodAllergy, #FoodisMedicine, #gluten, #Glutenallergy, #Glutenfree, #GlutenfreeDiet, #GlutenFreeMeals, #Glutenintolerance, #GlutenSensitivity, #Non-CeliacglutenSensitivity, Celiac, Celiac Allergy, celiac awareness, Celiac Cure, celiac diet, celiac disease, celiac friendly, celiac life, celiac medicine, celiac research, Celiac Research. Celiac Diet, celiac safe, celiac sprue, celiac vaccine, celiacawareness celiaclife celiadfriendly, clean food, food, food allergy, food is medicine, food sensitivity, gluten, gluten allergy, gluten free, Gluten Free Diet, gluten free foods don't really taste like their gluten friends. Second, gluten free meals, gluten intolerance, gluten sensitivity, glutenfreemeals, healthy food, non celiac gluten sensitivity, Non-Celiac Gluten Sensitivity1 Comment
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Controlling celiac

The only "cure" for celiac disease is a gluten free diet. No medicine or pills can degrade the gluten to alleviate the autoimmune cascade associated with celiac disease. I think we need to talk about control rather than the gluten free diet being a cure.

October 11, 2020October 11, 2020#CeliacAllergy, #Celiacawareness, #CeliacCure, #CeliacDiet, #CeliacDisease, #CeliacLife, #CeliacMedicine, #CeliacResearch, #CeliacSprue, #CeliacVaccine, #FoodAllergy, #FoodisMedicine, #Glutenallergy, #Glutenfree, #GlutenfreeDiet, #Glutenintolerance, #GlutenSensitivity, #Non-CeliacglutenSensitivity, #WheatAllergy, #Wheatintolerance, Celiac, Celiac Allergy, celiac awareness, Celiac Cure, celiac disease, celiac life, celiac medicine, Celiac Research. Celiac Diet, celiac sprue, celiac vaccine, food allergy, food is medicine, gluten, gluten allergy, gluten free, Gluten Free Diet, gluten free meals, gluten intolerance, gluten sensitivity, glutenfreemeals, NCGS, non celiac gluten sensitivity, wheat allergy, Wheat IntoleranceLeave a comment
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AMG 714/PRV 015

A new clinical trial is scheduled for what was once known as AMG714. It is now Pro015 due to the licensing and funding agreement between Amgen and Provention Bio.

October 8, 2020October 8, 2020#Celiacawareness, #CeliacLife, #gluten, #Glutenallergy, #Glutenfree, #GlutenfreeDiet, #GlutenFreeMeals, #Glutenintolerance, #GlutenSensitivity, #Non-CeliacglutenSensitivity, Celiac, Celiac Allergy, celiac awareness, Celiac Cure, celiac diet, celiac disease, celiac friendly, celiac life, celiac medicine, celiac research, Celiac Research. Celiac Diet, celiac safe, celiac sprue, celiac vaccine, celiacawareness celiaclife celiadfriendly, coeliac, coeliac life, coelic, gluten, gluten allergy, gluten free, Gluten Free Diet, gluten free meals, gluten intolerance, gluten sensitivity, glutenfreemeals, non celiac gluten sensitivity, Non-Celiac Gluten SensitivityLeave a comment
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Wild, wild west

For the most part, I often feel like celiac disease is the wild west. Science knows a lot about celiac disease. It is the only autoimmune disease with a known trigger - gluten. When gluten is removed from the diet, all is supposed to be okay. But many people diagnosed with celiac don't get to "healthy".

September 27, 2020September 27, 2020#Celiacawareness, #CeliacLife, #FoodAllergy, #FoodisMedicine, #gluten, #Glutenallergy, #Glutenfree, #GlutenfreeDiet, #GlutenFreeMeals, #Glutenintolerance, #GlutenSensitivity, #NCGS, #Non-CeliacglutenSensitivity, #WheatAllergy, #Wheatintolerance, Celiac, Celiac Allergy, celiac awareness, Celiac Cure, celiac diet, celiac disease, celiac friendly, celiac life, celiac medicine, celiac research, Celiac Research. Celiac Diet, celiac safe, celiac sprue, celiac vaccine, celiacawareness celiaclife celiadfriendly, clean food, food allergy, food is medicine, food sensitivity, healthy food, NCGS, non celiac gluten sensitivity, Non-Celiac Gluten Sensitivity, wheat, wheat allergy, wheat free, Wheat IntoleranceLeave a comment
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Celiac and the Liver

here are over 300 symptoms of celiac disease. When untreated, celiac can affect every part of the body. The liver can be affected by celiac and you need a liver to be alive. Today, we will talk about what the liver does and how celiac can affect the liver.

September 6, 2020September 6, 2020#CeliacAllergy, #Celiacawareness, #CeliacCure, #CeliacDiet, #CeliacDisease, #CeliacLife, #CeliacMedicine, #CeliacResearch, #CeliacSprue, #CeliacVaccine, #FoodAllergy, #FoodisMedicine, #Glutenallergy, #Glutenfree, #GlutenfreeDiet, #Glutenintolerance, #GlutenSensitivity, #Non-CeliacglutenSensitivity, #WheatAllergy, #Wheatintolerance, Celiac, Celiac Allergy, celiac awareness, Celiac Cure, celiac disease, celiac life, celiac medicine, Celiac Research. Celiac Diet, celiac sprue, celiac vaccine, food allergy, food is medicine, gluten, gluten allergy, gluten free, Gluten Free Diet, gluten free meals, gluten intolerance, gluten sensitivity, glutenfreemeals, NCGS, non celiac gluten sensitivity, wheat allergy, Wheat Intolerance1 Comment

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