Thank you, thank you, thank you!
Thank you to everyone for all of the support for this blog. I started writing for two reasons – Nexvax and information.
First, I’m in the Nexvax trial and thought that people would be interested in knowing how it was going. I am a believer in this medicine. I think it is where we need to go to get a true solution to this godforsaken disease. I don’t know if I’m getting medicine or placebo, but if I’m getting placebo, its a damn good placebo! I’ve let you guys know about the trials and tribulations I’ve gone through including some pretty gnarly, but temporary side effects. I’ve let you all know when I’ve failed and you have all been exceptionally supportive of my journey.
Second, I see a lot of bad information out in the Facebook world regarding Celiac Disease. I wanted to put together a place for good scientific information that was researched and investigated. I also wanted to give day to day tips and tricks from someone that lives in a Celiac body every day. I live with the consequences of being glutened along with you. I tell you how we cope in a non-gluten free house. I talk about how I cook and how we eat on a budget every day. I talk about the frustrations in eating out.
My hope is that I help in some way. I hope for the newly diagnosed, this can be a guidepost on your journey. I hope that for the less recently diagnosed, this can be a support area and information for what is around the corner in celiac research.
I’m also, not a writer. I probably use poor grammar, improper punctuation, and leave many a participle dangling. So, thanks for suffering through my questionable writing skills.
I cannot express how grateful I am that you enjoy this blog and I hope that I can continue to meet your expectations. Let me know if you want to see some information or for me to try something.
One thought on “Thank you, Thank you, Thank you!”
I am a relatively new reader but I so appreciate your blog! I am a research librarian, so I’m all about evidence, and I am appalled by the bad info people spout about Celiac online. I’d love to see corrections/explanations of misinformation. Either way, thanks for all you do!