I just reviewed the Celiac Disease Patient Advocacy Summit. There is a lot of good information regarding current trials and how to advocate within your community. But I want to focus on the need to participate in clinical trials. Lots of study types There are a variety of clinical trials out there for those with … Continue reading Why to participate in celiac disease clinical trials?
Exocrine Pancreatic Insufficiency (EPI) and celiac disease may be common cohorts. Today we will discuss the pancreas functions, what EPI is, and what the research says about celiac and EPI.
Eating plan for the first year being gluten free!
In my mind, gluten free means any food item free from any gluten containing ingredient. However, that probably isn't good enough for everyone. So, the United States Food and Drug Administration clarified the definition of gluten free. Today is all about labels!
I have a gluten free diet that isn't ideal, but effective to help with my celiac. So, the drug companies have to make a good argument to me that their drug will help alleviate symptoms and prevent damage to my intestines in order for me to spend my hard earned money on their solution. This begs the question - can someone prove to me that their drug works without a gluten challenge?
Gluten free food boredom is a real thing. Many times, those of us with food issues like to stick to the same foods because we know they are safe and we won't get sick. I think this is both good and bad.
Things are going well. Rotation of celiac safe meals and restaurants are standard in the house. Grocery shopping is easy because you can real labels like a champ. Symptoms are under control. Then the doubt seems in - is the diagnosis correct? Do I really have celiac? Could they have gotten it wrong?
Expecting a baby is nerve racking and exciting time. Parents can begin to introduce solid foods at 4 to 6 months. For most, this is a very exciting time. But for those with celiac, moving to solid foods can be a time a of great concern. If a parent or sibling has celiac disease, there is a much greater chance that the child will have celiac disease. So, when is the best time to introduce gluten containing foods to at risk children?
The only "cure" for celiac disease is a gluten free diet. No medicine or pills can degrade the gluten to alleviate the autoimmune cascade associated with celiac disease. I think we need to talk about control rather than the gluten free diet being a cure.
A new clinical trial is scheduled for what was once known as AMG714. It is now Pro015 due to the licensing and funding agreement between Amgen and Provention Bio.