The three S's of celiac disease - symptoms, self-diagnosis, and my soapbox.
Over the past 10 years there has been an increase in the number of celiac patients around the world. A few theories regarding the increase in cases are increased awareness, easier screening for celiac, increased hygiene, increased gluten consumption earlier in life, and increased concentration of gluten proteins in wheat. We are going to talk about a recent study evaluating the immunostimulatory parts of wheat.
Yesterday we discussed how it felt to have Covid and what my symptoms were. Because I've seen several posts in the group regarding how covid symptoms are similar to when someone gets glutened. For me, they were absolutely different in symptoms and intensity. Let's explore!
"You've got double Covid pneumonia" the doctor told me. Well, that was not what I was expecting but I guess I don't have much of a choice. Today I'm going to talk about my Covid journey.
In the last week or so, gluten degrading enzymes have been all the rage. BeyondCeliac and Celiac.com have both put out articles relating to gluten degrading enzymes. What are they and why all of a sudden are we talking about them?
Yesterday, I talked about a case study where a guy with celiac disease taking tofacitinib for a different reason while consuming gluten showed complete clinical remission. Today we are going to talk about why this not be quite as promising as one hoped but may still need to be investigated.
According to the case study published today, a man with celiac disease, alopecia, and rheumatoid arthritis was prescribed off label Tofacitinib to control the alopecia. He had always been less than strict on his gluten free diet and after starting the Tofacitinib returned to a gluten containing diet. Routine follow up for his celiac disease detected no mucosal damage in the small intestine. Wow! I've got some questions here.....
I talk about my life a lot. Sometimes probably more than you might like, but I cannot always do the science. Sometimes I'm not in the mood to do the heavy research required to write. Other times it is because I have done the research and I haven't had time to process it all. And we are planning for vacation here. Today, I'm going to talk about it all!
A nice person asked me yesterday for advice in living with roommates and a refresher on cross contamination protocols. Roommates pose an interesting problem for those with celiac disease because you cannot control their behavior. You can request certain things and hope they comply, but can never be sure. You have to do your best to stay safe. So, here are some suggestions for keeping safe while living with roommates.
My new favorite game is "Do you have this too?" or alternatively called "Has this ever happened to you?" I like this game and want to make sure we all understand what it is and how to play.